Rare Disease Day 2018 and the one-year anniversary of my being open and telling everyone I have Polycythemia Vera.
MPN Research Foundation:
http://www.mpnresearchfoundation.org/
NORD
National Organization for Rare Disorders:
https://rarediseases.org/
"In honor of Rare Disease Day I'd like you all to know I have a rare chronic cancer called Polycythemia Vera. You've probably seen some of my posts on my page about it. It has been a struggle for the past couple years although I push everyday to feel better. Because it is rare there is not a lot of funding for a cure, I am generally private about such things but at this time I'm comfortable enough to share and hope that with more knowledge of this disease, something can be done to find a cure.
We all have our battles, this just happens to be mine.
Wishing you all health, peace and love! ❤
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